Showing posts with label Juvenile Diabetes. Show all posts
Showing posts with label Juvenile Diabetes. Show all posts

Tuesday, November 1, 2016

My Diabetes Theme-Song

Look, guys! I have found a song that basically talks about my relationship with my pancreas!! 

Starset wrote a song called "Let it die." I'll put the lyrics here, and a link to the song at the bottom of the post. 

I cut you into pieces
Searching for your imperfections
I had plans to make you whole.
But all my threads couldn't stop the bleeding,
You're so far gone but I'm not leaving 
When all I know is you.

I've been looking for a way to bring you back to life
And if I could find a way then I would bring you back tonight. 
I'd make you look,
I'd make you lie, 
I'd take the coldness from your eyes. 
But you told me
"If you love me,
Let it die." 

Your eyes stare right through me
Ignoring my failed attempts to 
Breathe back life into your veins. 
But I can't start 
Your cold heart beating
You're so far gone,
But I'm not leaving 
When all I know is you.

I've been looking for a way to bring you back to life
And if I could find a way then I would bring you back tonight. 
I'd make you look,
I'd make you lie, 
I'd take the coldness from your eyes. 
But you told me
"If you love me,
Let it die."

And you left me
More dead than you'll ever know
When you left me
Alone.

I've been looking for a way to bring you back to life
And if I could find a way then I would bring you back tonight. 
I'd make you look,
I'd make you lie, 
I'd take the coldness from your eyes. 
But you told me
"If you love me,
Let it die."




Reason for this? When haven't I looked for a way to bring my pancreas back to life? Also, my pancreas was killed because my body destroyed it trying to fight off an immunization. So literally, I cut it into pieces searching for imperfections. Although I had plans to make it whole, I couldn't fix the damage that had been done. 

I'm definitely sure this isn't what the song was written for, but it works for me! :) 

Happy Diabetes Awareness Month!!!! 

Tuesday, July 26, 2016

Prepared For War, And Then....

I went to bed a few nights back. After dealing with a lot of overnight lows previously, I grabbed two juice boxes and several fruit snacks. I proceeded to show my ammunition to my mom and my Tay-dar and tell them "I am prepared for war."

Well.

Diabetes laughed.



I definitely did not need any of the ammunition I had prepared. My blood sugar was high all night, and I didn't realize why until 6:30 the next morning. Autumn (my Tay-Dar) woke me up and we smelled insulin. My blood sugar was in the 300s until that time because my site had fallen out in my sleep. Diabetes was also prepared for war. A little better than I was, apparently.

Naturally, that meant that my day started at 6:30 am. I'm actually not going to complain about that, because my days are usually better when they start then.

I guess I'm just posting this to remind myself and my readers how unpredictable diabetes is. I thought I knew what was going to happen, but diabetes proved me wrong. It's also a little scary when I know that I was only 184 by the time 6:30 came around--all of the insulin I was trying to give myself all night was on my bed, it was not in my body. Somehow, it dropped from 300+ on its own. That's very scary to me... It is predictably unpredictable, anyway. I've been good overnight so far since then, but I'm still waking up so I can make sure it stays that way.

Thursday, July 21, 2016

My Favorite Disney Characters

The shows we watch as kids teach us a lot. We find ourselves connecting to characters on different levels because of where we are in our lives. Most often, the movies teach us to fight for what we believe in and they teach us how to be strong (especially if you are female).

Well, the cartoons I watched as a kid taught me a lot about diabetes too. Some things I didn't even understand until here recently. Please let me share with you what I learned from some of my favorite Disney and other cartoon characters.


Stitch, from Lilo and Stitch
"Ohana means family, and family means no one gets left behind or forgotten."
Stitch taught me how to tame my little monster. He was created to be evil, but he found a way to be good instead. I kind of relate my diabetes to him sometimes. He was very misunderstood and so am I. He found people that loved him and made him family, and he loved them enough to try. I'm strong enough to find a way to fight my evil, too.

Dory, from Finding Nemo
"Just keep swimming."
I love that. Dory showed me soooo many things about life, just by this one quote! When I'm having a rough day with diabetes and I feel like I can't take it anymore, I pray and I remind myself: "what do we do? We swim, swim!" This character has helped me get through so many rough days. She taught me how to fight with a smile. 

Elsa, from Frozen
"Let it go." 
"Don't let them in don't let them see." Okay, so maybe I don't have dangerously awesome ice powers that could potentially kill people. But I definitely have something inside me that I've tried to hide on more than one occasion. I used to try to keep it locked up so no one had to see what I struggle with. If I don't struggle, that makes me strong. Right? Wrong. Everyone struggles. We just struggle differently. Elsa taught me to "let it go," because I'm happier when I don't have to worry about being a perfect diabetic. I worry about enough as is, I shouldn't have to worry about being perfect on top of it. I read this thing one time about her... apparently the movie was originally scripted with Elsa as the bad guy. One of the production people had a child with Type 1 Diabetes, and the child related Elsa's loneliness to their own. I cannot tell you how true that is. We feel alone. Like no one understands what we go through sometimes. I know that my family helps me get through everything, and I can't be more grateful, but they will never know first-hand how it feels. I never want them to, but it still makes me feel alone.


Kayley and Garrett, from Quest for Camelot
"You don't know my daughter." 
I actually learned a lot from these two! This is one of my favorite movies. If you haven't seen it, Kayley is very stubborn and Garrett is very blind. What did Garrett teach me? I can do whatever I want to, despite my disability. I could even live in an evil enchanted forest and "share my world with no one else, all by myself, I stand alone." I don't want to, but I could. I'm strong enough to do that. What did Kayley teach me? Two things. First: It is okay to ask for help. She needed Garrett, and he needed her. They make such a good team and they are only complete when they are together. Second: Momma has faith in you, even when she makes you feel like she doesn't. The mother daughter relationship in the movie is beautiful. When Kayley escapes to save Camelot, someone tells her mother that she'll never make it. The response is amazing. "You don't know my daughter." I imagine that is what Mom says when someone doesn't think I can handle diabetes. "You don't know my daughter." 



Belle and Beast, from Beauty and the Beast
"The Beast" isn't always so bad.
Initially, Belle was terrified. But she soon learned that "the Beast" wasn't really a beast at all. That teaches me exactly what Disney intended to teach me. Just because people look different doesn't mean they are evil. Or however you want to word it. But it also teaches me that there is nothing wrong with me, just because I am different from a lot of people. I need to treat others with respect and know that they are people, but I need to not expect people to treat me differently because I am a diabetic. My beast does not define me.


Anastasia
Actually, I can.
Sometimes I may not do it gracefully. But yes, I can. Anastasia taught me that I can fight, despite the fact that I'm a girl. Sometimes girls are stronger than guys! She had some pretty tough circumstances to overcome, but she definitely beat the odds. Not always gracefully, but she did. She taught me not to give up, kind of like Dory, but she also taught me that it's okay to be me while I do that. I'm not graceful all the time. No one is. Perfection is impossible and overrated. I'm beautiful, despite my issues. I'm strong, despite my weaknesses. I'm capable, despite my incapability. I can, despite how hard I will have to fight to achieve it. 

Tow Mater, from Cars
"What's wrong with rusty cars?"
There is obviously something different about me. It can make me feel like less of a person, or like I'm just occupying space. I'm broken. I'm not like you. But what's wrong with rusty cars? There is nothing wrong with me, regardless of how different I am. I can definitely have fun with my different-ness! I don't have to feel like I'm just occupying space and I'm a waste, because there's nothing wrong with my kind of brokenness. It's just broken differently than everyone else. I'm still working, and I'm still a person. I don't deserve to be treated like less of a person because of my disability, and I shouldn't allow people to see me that way.

I'm sure there are plenty of other characters that have taught me things. I just can't think of any right now! :) I think a lot of them kind of repeated themselves, but they each taught me individual lessons about my brokenness and how "normal" I am. They taught me how I should be treated, and that I shouldn't settle for anything less than respect. They taught me how to be strong. 

God taught me all of this, obviously, but He chose to use these characters in a lot of ways to do that. 


Wednesday, July 20, 2016

When Insulin Doesn't Work

I was following my Tay-dar into school Monday. I was wearing flip-flops and she was wearing her boots. Well, I walked into the back of her boots while she was taking a step forward. My left toenail caught her shoe and it split down the middle (but only about half way).

Autumn had some band-aids on her, so I wrapped up my toe because it was bleeding like crazy. I took some ibuprofen too. She was testing and we were waiting on her, so it was about 4 hours later that we actually went home.

Usually that kind of thing will send my blood sugar sky high and leave it there until my body heals. I was very blessed on Monday, because the highest I went was about 220. I was able to keep my sugar mostly under control. The ibuprofen must have helped quite a bit.

That's one of the unknown truths about diabetes. Any kind of physical pain can cause my diabetes to go crazy. The small injury on my toe usually leads to at least a few days of high blood sugars that don't respond to insulin. I have to take care of the injury before insulin will help me. If I am sick, I have to remember to take medicine to keep my sugar down. Otherwise insulin is useless. The same applies to emotions. If I am frustrated or stressed out, diabetes responds to my situation. Unless I can calm myself down, insulin will not help. Yes, insulin is amazing and it is a complete game changer in this war with my little monster. But the game changes eternally more when my body doesn't respond to it. That's something that people don't often think about. Insulin is not a cure by any means. Sometimes, depending on the situation, it doesn't even work the way it is supposed to.

Insulin isn't completely helpful when....


  • I'm sick, as I mentioned above.
  • I'm emotionally distraught, as I've mentioned above.
  • there is some kind of physical injury on my body, no matter how small. 
  • the insulin is weak, warm, or out of date. 
  • there are air bubbles in my tubing (the insulin could be working fine, but I'm only getting air). 
  • my site is getting old.
  • my cannula has kinked (once again, the insulin could be fine, I'm just not getting any). 
  • it has been through several temperature shifts (i.e., the pharmacist didn't put it in the fridge, but we did when we got home. Yes, that has actually happened before).
Please don't assume that I am fine, just because I have insulin. It saves my life everyday, but it isn't a cure and it shouldn't be treated like one. There are still some things I have to work around when it comes to diabetes. 

Saturday, July 16, 2016

Bad Day.

CAN WE JUST NOT TODAY, DIABETES?

I have been battling with 300 since about 11 am! I am so tired of diabetes right now! The honest truth is I feel like I've been hit by a truck, and I'm irritated enough that I'm not very fun to be around. This is mostly because of a site that I waited too long to change. But the longer I waited to change it, the higher my blood sugar went and it stayed there. I got irritated that it wouldn't come down, and that made matters worse. It won't come down if I'm irritated. I had to calm myself down, but it still didn't come down until 12 hours after it spiked. 

It's no fair when it throws me a wildcard... 

I ran today to try to get it down. I had a TON of insulin, both with a shot and with my pump. I took medicine. I did everything I could have, and it would not behave. 

I even drove in town to meet a friend before it went up so high. I had to call my Mom and Tay-dar to come get me! That makes me feel like an inconvenient failure.  

Yes, God is good. All the time. Even when my sugar won't behave. But sometimes I have a hard time dealing with my little monster. Still, I'd rather it be me than you. 

Thank you for letting me rant a little. 

Friday, July 8, 2016

Diabetes is INCONVENIENT.

Non-diabetic: "How did you sleep?" 
Me: "I'm a diabetic!" 

I didn't sleep at all last night because I was fighting with my highs and lows. I kept bouncing between 180 and 50 (I'm still only at 54, and it is 5:55am). I'm not even entirely sure why that happened, since I ate dinner a little later than I should have and everything! 

I had a rough time at work yesterday because my little monster kept demanding attention. I was 285 when I clocked in at 1:30, but by 2:30 I was only 70. It dropped from there and I stayed at about 60 for a while. I set a temporary basal of 1.0 unit per hour, which is .2 lower than my normal basal. When I went to break I had to eat a total of 156 carbs before it would go up. The scary part is I only bolused for 41 of those carbs, and I never went above 150. I had dropped back to 70 by the time I got home. 

What did I eat? 
  1. I had an entire Cherry Coke = 70 grams
  2. I had a bowl of broccoli cheese rice = 41 grams (which is what I got insulin for)
  3. I had to have TWO boxes of apple juice = 30 grams
  4. I had a grape juice/soda thing = 15 grams.
  5. Total = 70+30+41+15=156 grams before my sugar would even move. I didn't get insulin until it started going up.
So that was all before I got home at 7 pm, and then it started again. I dropped back to 70, so I drank some more Cherry Coke because it was what I had in my hands. Then I had a fruit snack, I think. I honestly can barely remember most of yesterday. 

After I had my snack we had to leave because Mom had to bring Dad's dinner to work. My blood sugar stayed at about 118 until 9:30 pm when we had our own late dinner. I got an omelette to make sure it would stay below 180 until morning. Usually, if I eat something with more carbs than that I spike and it doesn't like to come down. That was not the case last night. 

We went to Walmart for some things before we went home. It started dropping again at about 11 pm, and by midnight I was only 50. I sat down in the benches by the restrooms and waited for Mom to checkout, I had a juice that she bought and a fruit snack. 

I went to bed when I got home, but I couldn't sleep because it felt like I was dropping. Initially, my sugar actually went up a little bit. I was at about 190 and my dexcom alerted me. I got .7 unit of insulin and rolled over to try to go back to sleep, but I never could because I still felt like I was dropping. And now I've been fighting with low blood sugars since 4:30 am, having eaten two fruit snacks and had a cup of apple juice. I've lowered my basal, too, which means I'm getting less insulin than I normally get.

I'm actually really proud of the way that I handled that, though. A lot of times I'll force myself to go back to work or sleep or home or whatever my goal was before I discovered the low. Yesterday and today, I said no and I meant it. I felt bad for making my family wait for me, but I had to make sure I went above 70 before I got up. That's my rule at work when I drop. If it isn't above 70, I can't go back to work because it drops too fast. So even though I felt bad, I followed my safety rule and waited. It went up in about 20 minutes. I can't force myself to go back to sleep when it's low, so I've learned. I don't really want to die, so I have to wait until it goes up before I can be unconscious. Today I just gave up and started my day. 

Lesson learned.
DIABETES IS INCONVENIENT.